Three Years

23 Feb 2015 15 Comments

by Denise in Death, Death of a Child, Faith, Grief, Motherhood, Spirituality Tags: , , , , , , , , , , ,

Today is three years since Philip died. Since we found out he died, because he really died on 2/22 but since they found him on 2/23, that’s the day that’s on the birth certificate, the day it became real and true and official. These things matter, like I have to get it clear in my mind, I have to understand, and somehow I think these details will help me. Like I have to explain this to everyone because if I’m honest about all of it – the way it happened, the way I feel about it – then I have something to hold on to. All these thousands of words I write, these deeply personal words I publish, both bind me to my son and keep me grounded.

Three years, and I think I should have something wise and profound to say, something special to honor my son. But I’ve somewhat disconnected – I think a psyche can only take so much at a time. Grief, for now, is no fierce burning. It’s turned me into something aloof, distant. Lately, what I feel most, when I feel anything I can clarify, is anger. I noticed it because I’ve found myself saying ugly things at every day annoyances, and I am too easily annoyed. The dirty dishes, the unmade bed, the sick dog who needs his medicine and has to be carried up and down the stairs. It was the vulgarity I spewed that shook me up – it wasn’t anything I’m used to saying. Oh, I thought; I’m angry. And if there’s one thing I can’t take feeling, it’s anger. Because what do you do with such fury? How do you contain it? If I let my anger bleed out even a little I fear where it will take me. Philip isn’t coming home. I want him here. I can’t do anything about it and after three years I do know this is so. It seems more so than ever. I’m helpless to do anything about it. I am so angry that if I feel it I’m afraid it will suck me back to three years ago, to what it felt like to hear those three little words that chewed me up and spit out into some void that sometimes I think I’m still falling down into: “They found him.”

They found him. How the fuck am I supposed to live with that?

Well, I do live with that. I can live with that. Because in certain ways time has collapsed. What is time, anyway? It’s pain, for sure, because if there’s one thing pain needs, it’s time. If I think back to what happened or forward to a life where I grow old and Philip doesn’t, I will go crazy. But right now I can live with this. I don’t want to have to, but it is my reality. What does it mean to say three years? We’ve made up these things we call days and months and years. We give them names and think that gives us some control. We number hours and decide what should happen within those hours. We group them for convenience, we dole them out, we covet them. They feel longer when we’re anxious and shorter with our pleasures. So when I say time has collapsed what I mean is that in many ways I’m just paying attention. To Natalie, to work, to writing and knitting. To closely following whatever creative urge I have because creating lies outside of time.

Grief isn’t heartless. Grief is a teacher. Grief is the way into my heart. For that I am grateful. I am not someone who has loved life. I am not someone who has understood why anyone would want to be here. But never have I felt more alive than I do now. That’s Philip’s gift to me. What is the point of his death if I die, too? And how hard is this to grasp because if I choose to live I still don’t understand I’m not betraying him and I’m not losing him. But the pull to life is strong. The only betrayal would be to resist it, to make the fact that I’m grieving become a role. If I’m playing a role than I’m bound by fantasy. I don’t mean to say I’m not grieving – I’m saying that grieving is as fluid as everything else in life. I can’t say I experience his death the way I did three years ago, as if the intensity of it has to remain or I don’t truly love him. When someone asks how I am, part of me wants to say I’m broken because then they will care, then they won’t forget Philip. But those aren’t the right words. There is no brief conversation that’s going to let anyone know how I “am.” So I say, “I’m okay” and am content to leave it at that. Because after three years, the need to say how truly terrible this is is ebbing. When I need to talk about it, I come here and write it.

Three years, and still Philip is close. I’ve been told more than once that he can’t rest in peace until I, too, am at peace. That he can’t be free until he knows I’m okay. I disagree. He knows I’m okay – I’m the one who has to get it.  And I don’t think this is about “resting.” I think it’s about living, which is beyond the impermanence of a body. When it comes to these things, I’m willing to trust my own experience more than someone else’s, which is a triumph not only for me, but for Philip as well. I can’t make sweeping generalizations about the dead. I can only say what I know about Philip. That he’s kind and he’s patient, and he’s not worried that what he’s trying to show me is still, in many ways, eluding me. It’s his faith I rely on when I can’t find my own.

Many years ago I was told that this was going to be a very spiritual life for me. Wow, I thought; how cool is this? Visions of softly winding roads lit with a sun I’d finally enjoy passed before me. Who knew instead of a blessing it would feel like a curse? Still – it’s my life and my path and if it meant Philip would only be here for 21 years I’d still rather that, than not to have known him at all.

So mourn him I will – argue, I won’t.

© 2015 Denise Smyth

The Lasts

15 Feb 2015 13 Comments

by Denise in Death, Death of a Child, Faith, Grief, Motherhood, Spirituality Tags: , , , , , , , , ,

It’s February again, the month of lasts. Last time I saw Philip, last time I spoke to him, hugged him, texted him, left him a voicemail. Last time I told him I loved him and listened as he said it back. The deeper I move into February, the more I withdraw. I am alone in ways that only death can teach. There is something about life and death that no one can give to me. It can only be realized because it was always there. Thing is, I can’t reach it. I can’t define it. I hurt terribly about it because something is missing. Something more than just Philip. The hole he left only grows larger because that is where life is. And like it or not, I am being sucked swirling down into that deep. There is no way to resist. Except to keep my eyes closed and refuse what he wants me to see.

February. It’s different, as everything is always different. I know, every day I know, it’s February. I am walking apart, taking one careful step after another. I can’t see where I’m going, I only know I walk with death. This is not a bad thing; it’s not a good thing. It’s just what’s so and I would like to get to know death. It is, after all, my constant companion. I want to keep it close. Anything that has to do with Philip I want to keep close. I need solitude. Natalie’s moved back – she is all the company I need right now because I love her so. I keep to myself much as I can, spend whole weekends in my apartment. I consider it a victory If I park my car on Friday and don’t move it until Monday.

And why, I wonder, is that so hard to understand? This is my life and I’ve lived it enough to know what I need. I created Philip’s birth and now I’ll create the way to live in his death. Three years is nothing. It’s as though he just died, yet it’s like I’ve not seen him in forever. What is time? It’s perception, is all. My 24 hours are not the same as yours. I’m not talking about clock time. I’m talking about psychological time – past, present, future. All that’s real about time is that it’s always now. So can I, for now, live with Philip’s death? Yes. I can and I do. I show up for work, I show up for my daughter. And in my alone time I write, I knit, I sew. Creativity is a call to life. I am not sitting and crying, I’m sitting and knitting. If I did sit and cry, then that would be what I needed to do. I bristle when I’m told I shouldn’t be alone. And I think anyone who tells me I should be doing anything other than what I am is afraid of getting burned by the fire of this mad grief. Because death is exactly what we try to avoid every day, and who wants to see it in the eyes of a mourning mother.

When Philip and Natalie were little, I’d bought a book on numerology. I’ve always been fascinated by the unseen, by wanting to commune with something I knew was there but couldn’t quite grasp. So I read maybe half – because really, there wasn’t a book that could give me what I was looking for – and put it down after I went through the exercises that would tell me what my own personal number was. The result was that 2 was going to be an important number for me. 2? What’s with 2? Give me complicated 3 or sexy 9, but 2? 2 had no personality, meant nothing to me. Besides, it was an even number. How much more boring can you get?

Philip was found lying on the floor of his room on 2/23, which is the official day of his death. But we know that he really died on 2/22. I’d say 2 got real important. It took his death to connect me to the unseen. His death is both a blessing and a curse. I am closer to Philip now than I ever was. It is not his body I need, much as it’s what I want. Why do we cling so hard to these bodies that are only temporary? I wonder that I don’t let myself be more comforted by Philip’s presence, by the way he nudges me, helps me, all the time. It’s merely his body that’s gone, and if it wasn’t, I wouldn’t know the things I now do. I live on two planes. The one where my bare feet feel the cold floor, where I pick up dog shit, shop for distraction, spend too much time fretting over what to wear. Then there’s the plane where I feel loved and tended to, where I know what matters, where I see how fleeting this all is and that’s okay because it’s what is so and to argue about it is pointless. To be in touch with what’s beyond what I can see is to be graced.

February. I don’t want it to end. I know it’s a construct, but I feel safe here. I feel close to my son because this is the month he  died and so offered me an opening to the Divine. This is the month I excuse myself from obligations I don’t much tend to anyway. It’s not that I don’t care, it’s that I haven’t the energy. Going to work is about all the going-out, all the interruption from my real work, that I can take. I need the calm and quiet of my home. This must be what seedlings go through before they sprout. They live in the deep dark until the day they poke their tiny heads out – then they are fragile things, growing roots underneath as they reach for the sun. Some of them make it, some of them don’t. Me? Resist though I do, I know something that is difficult to say. I think I’m going to make it – and Philip wouldn’t have it any other way.

© 2015 Denise Smyth

How I Practice

01 Feb 2015 9 Comments

by Denise in Death, Death of a Child, Grief, Motherhood, Spirituality Tags: , , , , , , , , , , ,

I’ve been getting rid of stuff. Because when there’s too much of what you have, it becomes stuff instead of what it really is. It’s not clothes, books, shoes, jewelry, fabric; it’s stuff. And when there’s too much around there’s that much more of a psychic load to carry.

But it’s a mistake to get rid of things for the sake of getting rid of them. Things have value. I don’t want to worship what I have – I just want to understand what it all means. I want to remember everything has a life cycle. If I buy something, I’m responsible for seeing it through to the end. Whether it’s become garbage because it’s useless, or it’s something I donate it because I’m overwhelmed at the thought of dragging it to consignment, I am responsible.

I this started back in November – I took every piece of clothing and every pair of shoes I owned and put them on the living room floor. Panties included. Then I picked up each piece and asked myself if I loved it – I did not ask when the last time was that I wore it. And if I didn’t love it but didn’t want to give it away, I asked myself why? Like the dark green sweater that found its way back into my drawer. It depresses me when I wear it – it feels dark and sad and I’ve enough of that inside without wearing it outside. I kept it because it was expensive, because I bought it only last year, because Natalie really liked it and part of why I bought was so she could wear it. We often share clothing (which means she borrows my stuff) and I find myself greedy to be the one who can claim ownership. But she’s the one that likes the sweater and now she’s the one who owns it.

If I can’t let go of a sweater, what am I going to do about the last letting go, the biggest one of all?

During this purging, Laura, Philip’s first serious girlfriend, came to visit with her friend, Ella. Natalie and I lived with Laura and Nadiya, her mom, for a few years before I got my own apartment. Laura wanted to come over to see my apartment, to meet Nikki, to rummage through my clothes before I gave them away. While she and Ella were here, I told them the story of the day I was packing to move, and decided not to drag along the 3,000 or so pages of emails that I’d stored under my bed (which is a story for another time). Downstairs I went with boxes full of paper, sat on the bottom of the staircase and started tearing. Two good long rips later I balked. Was I doing the right thing, was I going to need these one day, what if  I needed them to write the book I thought I was going to write before Philip died, the book about something that seemed so important and came to matter little after I discovered just what life could do to me.  That’s when I noticed a something on the on the floor. I picked it up to find it was a clothing tag from the store called Forever 21.

I saved that tag, and as I told my story, I pulled it out for dramatic effect. And since I have a habit of putting things down and forgetting where I put them, that is exactly what I did. A couple days went by, and it hit me that I remembered picking up the tag, but I didn’t remember putting down the tag. I went to the cubby in my desk where I kept it, but it wasn’t there. I tore my desk apart, looked under the couch and the bureau, picked the edges of the rug. It wasn’t anywhere. That tag was proof that Philip was around I needed it. But a few panicked minutes later I stopped – I cannot stay upset for things I can do nothing about. And if I’m practicing letting go, then what did it matter? What mattered was that it happened, and what it means to me. I still have my story to tell. Maybe without the dramatic flourish at the end, but it’s still my story.

Then came Thanksgiving at my brother’s. Late in the evening, when I got home,  I got out of my car and said, “Philip, I want something.” I opened the door to my building, and in the entry was a box of recycling with a glossy flier on top with a store announcing a 21%  off sale. 21% off?? Who has a sale for 21% off?? So I lost a tag but have a flier. For now.

The phenomena of the tag and the flier are not isolated incidents. Philip communicates with me every day, in startling ways. I have stories and stories. I am graced, for sure. I’ve no doubt he’s here, and he won’t let me forget. Still – he’s dead and it terrifies me. But…he’s here. Not his body, but his presence is clear. So I find myself choosing my words more carefully. I can’t say Philip’s gone because that’s not the truth. But he’s dead and I’m still trying to figure out what that means because it’s the end of our lives as we knew them, but it’s not the end of the story.

So why this raging grief, and what am I terrified of? Am I afraid to die? There’s a correlation between my fear of letting go and my fear of death. The less I’m attached to what or who is part of my life, the easier it will be to die. This life needs to be let go of and I can practice doing that every day. That’s not to be confused with, “Who gives a shit? I’m going to die anyway.” Because what I’m talking about takes courage. It is a conscious, meaningful decision to stop resisting what is. And the more I stop, the more I know love. Because love cannot be grasping and clinging. Which makes me question if I’ve ever truly loved, and what I really meant when I said, “I love you” to someone. Was it them I was really loving, or was it my need for them to love me?

The one true love I know is that for my children. That’s why I knew how to let them go. Let them be. And that’s why I’m in such deep communion with Philip now. What was between us in life doesn’t change with his death.

It was three years ago today – 2/01 – that I last saw my son. This is the season of his birth and his death. I find myself doing exactly what I did when he first died. Sitting on the couch, knitting and watching TV. If I have any advice for people who lose loved ones, it’s what someone told me when Philip first died: Follow whatever creative urge you have. So I knit, I write, I sew, I cook. I’m alone and quiet in my mourning because it’s time to tend to it.  Whatever letting go needs to be done around Philip’s death, I cannot yet do. When I say, “letting go” what I mean is to stop resisting what I feel. That doesn’t mean I won’t grieve any more, it does not mean it’s okay that Philip died. It just means I allow what I’m feeling to be as it is, knowing that – whether I like it or not – it will pass into something else.

It is in not resisting that I will mine the riches of Philip’s death. I am coming to understand that is the way to honor him, that is the way I can see his death was not for naught. His death means what I make it to be – and he’s asking me to make it my way into life.

© 2015 Denise Smyth

Enough

13 Jan 2015 6 Comments

by Denise in Death, Death of a Child, Grief, Motherhood, Spirituality Tags: , , , , , , , , ,

I’m still unsure about the world I live in, still rather stay home than do much of anything. I don’t much resist, for sure. I haven’t the strength. Or the will. Resisting life takes an energy I don’t have. I’m tumbling along and if life’s too fast for me, it simply passes right through. There is love, laughter, lightness. There is terror, grief, despair. There’s the bloody churning in my gut, always. I said, in my last, I was kind of numb. Not so now. Philip’s birthday is in a week, and next month will be three years since he died. And I don’t feel like wailing as much as I feel like I’m choking on it all.

But if I could – I would like to throw my head back and howl at the stars until I emptied out all these things I feel that I don’t want to feel, until I collapsed under that blue black sky, safe in all that darkness. Then there’d be stillness and oh, what relief. But who can remain some empty vessel? We are not made for that. Like the night turns into dawn, in that stillness, back grows my grief. Would I want it gone? I think not. It’s what I have to live with, it’s sacred space when I don’t muddy it up with things that don’t belong there. Like if I make some disappointment turn into brooding over Philip when it has nothing to do with him. Or when it seems safer to despair because that’s what I was used to way before Philip was born. So maybe that’s what I want. To clean myself out, start all over again, figure out how to grieve honestly.

But his birthday. Then his death day. And call it what you like, the hard truth is that it is his death day. It is birth and death that are opposites. Life simply is. Always, it is. Philip shows me that every day. He’s blurred the line I’ve constructed between life and death, and that forces me to contemplate what I think my body really is. It is an instrument, is all; it is a way life expresses itself through me, it is a useful tool for communication. But it is also what is so easy for my five senses to perceive – and to that end, I miss my son. That he is here is not a question. It’s his body, his hard and warm body, that’s gone. Like everyone’s body will be gone. His is gone too soon for me…but he is here and I cannot figure out what terrifies me, what this longing is, why I feel defeated. It’s an acceptance, I guess, this “defeat.” What I mean is I know in some new and strange way that Philip’s not coming home. He simply isn’t. And I am living on two levels and maybe for that I should be grateful. Maybe I can’t ever bridge the gap between them, not truly, not while I see myself as mostly a body even though I know I am more. Else how to explain the extraordinary way my son – my son – communicates with me. He is offering me, in his death, a way into life.

These months, in all their colors, fly by, and all of them lead back to Philip’s birth, Philip’s death. March icy blue and April tinged with white – months I’d rather avoid, months that reek of life anew. March is spring, April I was born. I do not like the awakening when I want to stay away and hidden. I am too vulnerable for new life.

Then May’s soft pink, June back to white, July hot yellow, August gold and red. September is golden, October glorious orange, November gray, December red. Then comes January – the time to rest, the time where it’s still safe but we’re heading toward spring and I can’t stop it. January is white and black, February dark green. Hard as these two months are, I want to stay with them, stay close to Philip’s extraordinary birth, to the tragic shock of his death. 24 years ago this black and white month I was waiting for Philip to be born and what that meant to me then stays with me now.

Sometimes I try to remember what I felt like to be pregnant, when I carried Philip, when I was first deeply in love with him. He is, of course, always with me. So let me remember the fullness of it, let me know that I loved him from the moment I knew I was pregnant and even though he wasn’t here, it was enough. And he is still here, and that has to be…enough.

© 2015 Denise Smyth

Who I Am Not (Part 2 – The Reunion)

31 Dec 2014 7 Comments

by Denise in Addiction, Death, Death of a Child, Grief, Lonlieness Tags: , , , , , , , , , , ,

I thought about continuing Part Two from my last post without mentioning Christmas. Something seemed wrong with that…but I didn’t – still don’t – know what to say. This has been the oddest Christmas since Philip died. Including the fact that I don’t know what to say, because when it comes to how I feel about Philip, I am never at a loss as to what to say.

I love Christmas. I love it because the focus is on family and loved ones, because I get to give gifts, because the streets are lit up and people say “Merry Christmas” and “Happy Holidays.” There was a time I would’ve snarled because how the fuck am I supposed to have a Merry or a Happy with Philip dead? But now I see it’s not personal – those are expressions of love and good will, and I will take all the tenderness that’s given me.

But this year was disjointed, pieces here and there, without a narrative. I have been reluctant. And removed. I look at Philip and I don’t know what I feel. There’s something I won’t touch here. I’m detached, but not because I chose to be. Detaching with love works. This is not that. This is the relentless march of life and at times there are things it requires of me – for Christmas, it required buying, wrapping, cookies, cake, chocolate mousse. It required spending time with Cindy, it required Christmas Eve at my brother’s. It required my tree, small and sparkly and which I kept lit – mostly -24/7.

I liked being at my brother’s and I liked being at Cindy’s and I loved giving my gifts. But getting there with all that doing – I hadn’t the heart. So what so what so what, I said? That did not help. Philip is not coming home for Christmas. Or anything else. I am not done being afraid. But I was numb. I was unable to feel what it felt like not to have Philip with me on Christmas. Who can I tell? I’m not ready to talk about it.

Peace, then, to all of you. If you’re suffering and that seems impossible, I wish it for you anyway. May it help you to believe that I believe.

*****************************

But this post is part two, The Reunion. For the last ten years, my classmates from  Junior High have been getting together annually, along with our homeroom teacher, Mr. M. This I discovered when one of them, Jo Ann, found me on Facebook. Everyone’s been looking for you, she said. Who is everyone, and why were they looking for me? I have a hard time thinking anyone would remember me, much less care to see me. I remember that time as the start of my rebel years. I was already drinking, smoking and taking drugs. I had a boyfriend and I had sex. I was too cool for the smart kids in my class, but not cool enough for the badasses I wanted to hang around with. I had it coming at me both ways. I belonged nowhere.

I decided to go, which for me was a walk on the wild side. My first reaction to any invitation is no thank you. Especially an invitation I considered dangerous: facing an unhappy past with people I couldn’t possibly know any longer, who I hardly remember knowing when I was actually in class with them. What if they thought about me the way I thought about me? Unhappy, distant, angry. By all accounts, I’m aging well, so the way I look was one less thing to worry about. And at that point, it was the one thing I brought to the table. I mean, if they didn’t like me, at least they wouldn’t say what the hell happened to her?? when they saw me.

But the fun of going was that no one, other than Jo Ann and Mr. M., knew I was going to be there. I arrived before most, and as people walked in, they tried to guess who I was. What shock and joy on their faces when they realized it was me. And I wondered why, all those years ago, I held myself back from them. Because it was more important to stand alone than be part of. I thought that was power. All it really was was lonely.

Reunions are perception shifters. You not only see your classmates differently, what you think you are is also shaken up. The biggest shock to me was that people liked me. They didn’t see the addict, the miserable girl, the condescending bitch I thought I was. “You were nice,” someone said to me, and while I once said “nice” is the laziest word in the English language because it tells you nothing, I was grateful that I was remembered as other than bitch.

The evening was a mix of past confusing present, and never more so than when Mr. M. reminded people that I had been Arista Leader. Artista was an honor society, and every year the boy and girl with the highest academic achievements were chosen as leaders. I’d forgotten, like I’d forgotten so much of what I achieved before I got to high school and determined to be mediocre. In sixth grade, I was Valedictorian. There was year I scored the highest in the district in the City-Wides in math, and the year when I scored so high in reading, my teacher refused to tell me my grade until she could figure out a grand way of announcing it.

But being reminded of Arista didn’t make me feel proud. I felt ashamed. We were all in the SP (Special Progress) class, reserved for the smartest of the smart. And my classmates were now doctors, lawyers, nurses, production assistants – and me, an administrative assistant. What had I done? Sure, I had kids – but anybody can have kids. And I couldn’t even keep one of them alive. How’s THAT for an achievement?

So much for not questioning “who I am.” Because that questioning was the conversation going on in my head. Until it got too painful and I started to talk. Turning to the half of the table where Mr. M. sat. I told them how troubled I’d been in Junior High, how I’d already started drinking and taking drugs. No one knew. I told them that life felt difficult for a long time. I talked about Philip, about some of what it felt like living with his death. I did not cry. I was telling my story. I was trying to connect.

Talking tamed the beast, at least for a bit. But not enough to get me to talk to the handsome man at the head of the table, the boy who’d been Arista leader with me. “Don’t you know all the guys were crazy about you?” I’d been asked earlier. No I did not. In Junior High I tensed when someone attracted me and only looked at them when I was sure they weren’t looking at me. They were looking at the pretty girls, the ones who nailed their outfits daily, whose boobs could fill out more than a training bra and whose butts were bumps, not bulges. When it comes to men, that’s the shame I cannot tame.

Shame is exhausting. And sad – so very sad. How much of my life has been lost in shame? How much care and comfort have I rejected because I was so ashamed to need? I thought if I let myself feel how much I needed I’d be swept away screaming, and who would want to come near me then?

I still weep for what I carry, wishing someone would appear and ask if I’m okay. No, I would say. I am not. And the best thing is that when I came from a day where I’ve had to listen to how John’s kid was a varsity golfer, Mary’s kid was accepted into Columbia, and Bob’s kid was auditioning for a Broadway play while my kid’s a bunch of ashes is in various jars around my house , I can say, “Today was hard,” and two strong arms would pull me close. No one can take this grief from me – I don’t want anyone to take it from me. I just want to come home to someone who cares.

© 2014 Denise Smyth

Who I Am Not (Part 1- The Question)

21 Dec 2014 5 Comments

by Denise in Death, Death of a Child, Grief, Motherhood, Spirituality Tags: , , , , , , , ,

I was listening to a podcast of “Snap Judgment” called “Identity Theft” when the host said there would be stories about people answering the question we all ask: “Who am I?” And I thought about that, how I no longer ask myself that, how angry I feel about that question. About how the first thing I think about the question is, who, exactly, is doing the asking?  Are the asker and the “I” two different beings? If someone asked me if I ever wondered who I was, I’d answer that I was the one doing the wondering.

It’s a relief that question doesn’t bother me. I used to torture myself with it. Who am I? Nothing, nobody, unlovable, average-everything and so seriously troubled that I didn’t finish college and didn’t have a career so I couldn’t even say I was something. And most devastating was I couldn’t say I was a writer. I wasn’t published, I hadn’t the legitimacy. So if I’m angry when I hear that question, it’s because it implies there’s an answer that can be found – at least in part – through naming what it is I do.

Of course, for the last 24 years I could call myself a mother. But that wasn’t ever enough. I told myself I stayed home with my kids not so much out of choice but because I hated my job and I didn’t know what I wanted to do. That was true – and what I wanted to “do” was – at that point – unknowable. I believed that was why I suffered depression – I was here, but what the fuck was I supposed to do with myself? Everyone (everyone!) had a life. Work, friends, vacations, interests. Whatever I was interested in I quickly tired of. And I spent much of my time alone.

Things have changed since Philip died and what matters or doesn’t has gotten a whole hell of a lot clearer. I don’t think about “who I am.” I just am. And I won’t be for long, either. I am as temporary as everyone and thing else. I get up every day with a heart that’s cracked open which means I hurt as much as I love. Then I tend to the day. If it’s a weekday I go to work. When I get there I do what needs to be done. I am an assistant – never have I cared less what title is given to what I do. I love my job, I love the busy-ness and diversity. The people are funny and demanding and we work as a team. I love all the ways I am helpful, and that no matter how much I do in a day there are things left unfinished, which means there’s always something waiting for me next morning.

So call me an assistant, call me a mother, a writer, call me whatever you think I am because as you read what I write you are forming a picture of me. That’s what we do. We label people, and since those labels have meaning, we assign that meaning to the person we’re labeling.  To label someone implies you know something meaningful about them. But really, all you know is what they mean to you.

Like this. I dress in what I’ll call Free People du jour. I live in a very liberal town. And when I used to care about politics (which is to say I loved the argument)  I called myself a Republican. One morning I called into the Brian Lehrer show to offer the lone Republican voice on something or other. The next day I met a woman I knew outside the school our kids attended. She hurried over to me. “I heard you on the Brian Lehrer show this morning. I didn’t know you were a Republican…I mean, you don’t dress like a Republican,” she said sadly.

So she saw my clothes and made me into someone, then heard I was Republican and made me into someone else. Those words have nothing to do with me because she’s the one who gave them their meaning – as well as my meaning, by extension.

So “who I am” came to seem a pointless question. The words I longed to use to tell people who I was – a writer, a quilter, a chef, a therapist – were words that conjured up a meaning to me, words that would give me an identity and show people the me I wanted them to see. An acceptable me. No. If I want to do those things, fine. Whatever troubled me wasn’t going to get solved by calling it what it wasn’t.

Philip’s death has left me a wide open space. To be his mother is not just to be the one who gave birth to him, nursed him, took him to school, tended to his needs. Because as he grew so did what was between us. Whatever I was to him when he was five or nine or 12 or 21 changed. The lines blurred, the power shifted. If he had a need I would rise up to meet it in a way that I would only do for my child. But the rest of the time it was a dance, a lovely, lively, lilting play between us. Sometimes I led, sometimes he did. Mostly we were in step with each other, always we did love each other.

To be an assistant is to help in a way I find joyful. To be a mother is to know love. To be a writer is to sit here and work to put words on what it feels like to be alive, what it feels like to live with the death of my son. But whatever it is I am doing, it is not who I am. It’s just what I do. Who I am is part of the mystery. My work is to respond to the moment, not ask myself questions that have no answer. Who am I, why am I here – impossible distractions from reality. Because no matter who, how or why – I am. And “now what?” is up to me.

But life will out, and what I need to live more deeply will be given me. And I am not talking about a walk in nature where the play of sun among the awesomeness of the now-naked trees reveals the meaning of God. How I long for my epiphany. I’m talking about the harder stuff, like going to my junior high reunion for the first time ever, which meant the past mixed in with the present. As did the shame and the joy.

Next: The Reunion

© 2014 Denise Smyth

The Argument (for Lucia)

01 Dec 2014 14 Comments

by Denise in Death, Death of a Child, Grief, Motherhood Tags: , , , , , , , , ,

(This post is dedicated to Lucia, mother of amazing Elizabeth Blue. I love you both.)

“When you’re unhappy you are at war with the truth.”
                                                My Son

I used the possessive there because the things Philip tells me are both simple and profound and I am humbled and grateful to be his mother. It’s because I want some acknowledgment that I brought this child into the world. It’s pride, and I do not say I’m proud of my children. It sounds arrogant and self-serving, as if they need to do something for me to be proud of them, as if their being wasn’t enough. Of course I praised them. Of course I’ve taken deep pleasure at their achievements, at the the things that were important to them. But to tell them I’m proud of them seemed a set-up where they had to do something to get something from me, and if they didn’t do it were they disappointing me –  but it wasn’t about me. Philip and Natalie didn’t have to do anything for me to be proud of them. Their presence was enough.

I wrote before of the way it used to feel to have Philip beside me, to be able to say, this is my son. I can’t do that in the way I want, but I can do it here, with his words. What he says is so right and so true and yet so so so damn hard.

I am not unhappy all the time. One of the reasons is my blog. Here is where I slow down, where I get to spend time with my grief and with my son. And I do need time with both. Another reason is work – I spend over 40 hours a week in a place where my spirits are lifted and laughing is easy. If I did such a thing as make a gratitude list, my job would be up top there with Natalie, Philip and all the people I care for. It’s a blessing, for sure.

But then there’s the quiet. That’s when I think about Philip and the shock of it all. I do better when I’m talking to him instead of thinking about him, because he does comfort. As the edges of my life grow sharper, clearer, I see a way to live with what I know, with what I’m being taught. What if I stopped arguing about the fact that Philip died? What would that look like? It doesn’t mean I’d be carefree about his death. But arguing creates more unhappiness in a situation already fraught with anguish and despair. Arguing is polarizing. It makes it impossible to experience the deeper emotions of what I call grief. “Grief” isn’t one thing. It would be nice to make this all neat and tidy by calling it grief and expecting something of it. Like it will get better every day, that there’s some end to it. There isn’t. But the rage around Philip’s death – that is what keeps me wracked with pain. When I stop the argument – which is what I do when I’m talking to Philip – then a deeper mourning is revealed. Then I hear things like, “When you’re unhappy you are at war with the truth.” Then I have a chance to make meaning. Because meaning isn’t found, it’s made. It’s not a secret that’s revealed, it’s not something anyone can give to you. It’s what you make of what is so, what’s uncovered when you pay attention.

So when I’m not arguing about Philip’s death I can experience what it is. And not just once – there’s not one meaning that wraps it all up. I will live with this sorrow until I die. And life goes on because life is not my life span or Philip’s life span – life is, and it is the fact of death that gives each of us life’s meaning. When we don’t think about death, we’re avoiding it. All the money that’s made and things that are bought and successes we strive for are all to avoid the inevitable. Then when it comes and we are unprepared we ask, what is the meaning, what was it all for? When all the meaning we needed was right in front of us. We just kept looking the other way.

“If you want to die fully, you have to live fully.” That, too, is from my son. Is that not something to think about? Because really, who wants to “die fully?” What does that mean? You and I going to die. So why not do it fully – the way anything you care about doing feels better when you do it fully. But you don’t care to die. The thought makes you unhappy. Because there you are, at war with the truth. If the truth of life is that we’re going to die, how do we live with that? How will we die with that? And how do we live with that most grievous death of all, that of our children? Our children, for God’s sake.

I can’t work with these questions when I’m arguing. Because I’m not listening, and if I don’t listen I can’t learn. Or accept. Or stop resisting. Or whatever words describe what I think I need to do to live with Philip’s death. It is when I relax back into his love that I can talk to him, that I hear what he has to say. Whether I’m asking him which socks go best with my boots or how the fuck am I supposed to live with his death, he answers. Then there’s room for something else besides this raging grief. There’s sadness and mourning that have room to turn into something else. When I’m not arguing I’m transparent, allowing what I feel to shift and move. Understand I’m not talking about happiness. Happiness comes and goes like every other emotion. I’m talking about allowing these feelings to become something different. I’m talking about discovery, I’m talking about the mystery. So sometimes it’s worse, sometimes not. It’s part of the mystery that I miss when I’m insisting things should be other than they are because this is the way I say it should be.

My son. My beautiful, kind, loving child. Look at what he’s done for me in his death – he has blessed me with a better life and he’s asking me over and over to go live it.

© 2014 Denise Smyth

What I Carry

19 Nov 2014 14 Comments

by Denise in Death, Death of a Child, Faith, Grief, Motherhood, Pregnancy and Birth, Spirituality Tags: , , , , , , , , , , ,

I’m in a river that’s broken through a dam, a river full of furious energy, mindless and untamed. Moving in one direction, but going too fast. I’m not fighting, I’m not even trying to get a grip. I wouldn’t know what to grab on to. I can’t think about it. At this speed, I don’t think, I just navigate past the danger. But I don’t breathe, either.

I smashed my car (no one got hurt and it didn’t get totaled). I spilled water on my computer, dropped my cellphone in the toilet. On a whim I looked online for an apartment and found one. But there’s the matter of the lease I signed for the place where I’m living, which means (so I’m told) I’m responsible for the remaining 8 months’ rent (read: $12,000). But there’s also the horrid brown water coming out my faucets and the refusal of the people responsible to respond to it. To me. That, along with several other issues, might help to break my lease, especially since my friend Cindy put her formidable lawyer shoes on and contacted the Property Manager.

And for whatever reason, I am beginning to understand what it means to “carry Philip’s spirit” into the world. I hate the phrase – it reeks of desperation and I’ve never understood what it meant. How could I? I am grieved and mourning and when I’m alone I can’t help but to just be. Whatever that is. I’ve not hidden how I felt since Philip died. Early on, I’d tell anyone and everyone. Salespeople, cashiers, the gas attendant; someone help me, please help me. I needed kindness. I needed to feel contact, which was impossible. I couldn’t make some effort to carry Philip’s spirit into the world. What I was carrying was crushing me as it was.

Two years and nine months later there’s been a shift. What I carry now, along with my sorrow, is Philip. Like when I was pregnant. For the first three months the only people that knew I was pregnant were my brother-and-sister-in-law and my parents. I said, as many do, that there was most chance of miscarriage during the first three months. I didn’t want to share the joy of pregnancy with anyone who I wouldn’t also want to share the anguish of a miscarriage with. But that wasn’t the all of it. It wasn’t even most of it. What I wanted was quiet time with my son. It would be a rare and short time that I didn’t have to share him with the world. He would always be part of me psychically, mentally, emotionally – but this was the only time he’d be part of me physically. He was my secret joy, he was love in a way I hadn’t known it. Once everyone knew it would be both a celebration and an intrusion.

And so it is now, in reverse. When Philip first died, I couldn’t stop telling people. Now I’m mostly quiet. It hurts. Not always, but often. It was after Philip came into the world that I wanted to share him. This is my son, I would say. Now I can’t, not in the same way. The other night someone asked how many children I had. I have two, I said; but my son died. “I shouldn’t have asked,” the woman said. “Of course you should have,” I answered. “It’s just that death is hard to talk about.” An invitation, for sure – but not one that was answered.

My relationship with Philip is constant and private. He’s too much a part of me to ever be gone. I know this – at least when grief doesn’t overwhelm. And as far as his spirit – I am kinder, more friendly. I am curious about people. I’m not so afraid of them any more. That is Philip, with his grace and ease. “Mom, I like my life” he once said, with a sincerity that stung because I could not say the same. To live with him guiding me is to live gently, is to let life be. And then things happen, then I meet the right people, without even trying.

Like this.

When I’d decided to look online for apartments, I sent emails to different realtors, who emailed back wanting to make appointments. I chose M. M. showed me two apartments that I really liked, one of which I wanted to live in. When I realized I couldn’t just break my lease, I started to flip. Not as bad as last year, which I wrote about here. And M. is one of the reasons for that. Besides her calm and her humor, she’s smart. When I realized I was most likely going to lose the apartment, I started babbling to her about last year and how hard it was and everything was too expensive and no one would take my dogs and she interrupted with, “Okay. But it’s not last year. It’s now.” When I cried because I had to turn that apartment down, she sent me a link to the Rolling Stones, “You Can’t Always Get What You Want.” When I called her up to tell her the various scenarios that could take place if I could break my lease in two months or four months or not at all, she said, “But we can only deal with reality. Reality is now. And now you have a lease and you’re starting the process to see if you can get out of it early. That’s what we have to work with.”

And really, it’s no surprise. It’s no surprise I chose the Realtor who’d say the things to me that I should be saying to myself. It’s no surprise that as I was driving and thinking Philip is the face of love is the face of love I passed police van #201, then got cut off by a car whose license plate had Philip’s initials. Yet much as I can rattle off the hundreds of times he’s let me know he’s around, I still spend so much of my down-time under the covers, waiting. Just waiting. Philip is asking me to live differently. He is offering me things to think about. He is suggesting that maybe I can try – just a little – to walk in the world the way it is, instead of being seduced by the misery of the underworld. He is asking me to have some faith.

I am grateful for what I have with Philip. That the bond we had in life is even clearer in his death. That he’s teaching me life isn’t what I thought it was, and neither is death. But my God –  I miss him, I miss him, I miss him and there is something too terrible about his death to bear.

But let me share some joy. Here is Nikki, five months old:

Nikki, five months old

© 2014 Denise Smyth

20 Years

05 Nov 2014 8 Comments

by Denise in Death, Death of a Child, Grief, Motherhood Tags: , , , , , , ,

Philip and Nicole - 1994?

Philip and Nicole – 1994?

Sometimes, when I especially want to torture myself, I think of life as a long, long road made up of days that turn into weeks that turn into months that turn into years. And “20” is the number that keeps coming up. I’m 56. It’s conceivable I’ll live another 20 years. And I say, “No. I cannot. I cannot live 20 years without my son. I cannot become an old woman who’s lost her son so many years ago, who’s gotten older while he’s stayed the same.” It’s as if in 20 years he’ll be more dead, as if “more dead” makes any kind of sense.

So here are my two angels, Philip and Nicole. Nicole died 20 years ago today. Which means my brother and sister-in-law have lived that long without her. They were at the beginning of starting their family when she died. She was four, and her sister Christina was 18 months, the same age as Natalie. They went on to have three more children. That’s a whole hell of a lotta love.

Philip and Nicole are ten months apart – she is the older one. By the time Philip was a year and a half, he and Nicole were the same size and had the same curly hair. People often thought they were twins. I have many pictures of them together, and in some of them – like the one above – there is something very adult about the two of them. One of my favorites – one I can’t find – is where they’re leaning on a low stone wall, Philip with his navy cardigan and baggy plaid pants, holding a sippy-cup and looking to the side; Nicole in her flowered dress leaning on him with one arm around his neck. In another world, he’d be the tough guy with the drink in hand, she’d be the doll by his side.

What to say? I’ll spend the rest of my life trying to figure that out. I miss these children terribly. They’ve shown me how bloody harsh life is; they’ve also shown me just how madly I can love. My heart is breaking all over again. Maybe that’s not such a bad thing.

Here’s one more photo. October, 1994. Nicole has only weeks left to live. She looks well, her hair’s growing back after the chemo. So were the cancer cells that raged in her head. But I believe these two are at peace, and for that I am grateful.

Philip and Nicole, October 1994

Philip and Nicole, October 1994

Give My Life, Live My Life

03 Nov 2014 11 Comments

by Denise in Death, Death of a Child, Grief, Motherhood, Spirituality Tags: , , , , , , , , , , ,

What wildness there is in grief. What unpredictability. And exhaustion. I’m tired of this crazy ride, I’m tired of missing Philip. Crying won’t bring him back, but I do it anyway. When words won’t come, tears take their place. I cry because I want my son alive, because I am helpless, because I want somebody to hang on to for a while, two strong arms and a shoulder I can tuck myself into and make believe, even for a while, that someone’s love for me is greater than this loss I don’t want to live with. And so the ugliness of grief – it creates a terrible need and then makes it impossible to meet.

My son. Sometimes I call him Philip, sometimes I call him my son. I’ve been trying more often to write “Philip.” “Philip” is older, is more independent, more of a partner. He is tall and handsome. He goes to school and pays his rent. He comes to dinner with me and even when he’s 21, he comes and lies on my couch when he’s not feeling well.

When I say, “my son,” I’m on my knees with my eyes raised to the holy heavens, begging for him to please come home. When I say, “my son” I’m lamenting more than saying – and I join the collective of all who’ve lost a child. It doesn’t make it better, that anyone else should feel this. We suffer a loneliness that can’t be touched because each of us lost our child and our special relationship and no matter who is suffering this, it’s hard to believe anyone else really gets it. Because Philip is my son and I am the one who lost him most.

I’d have given my life for my son. I’d have stalked, roared, clawed, destroyed anyone who dare try to hurt him. Because that’s what mothers do. I think I’ve been calling him “Philip” more because it hurts just a little bit less. Because claws and all I couldn’t protect my son, and if I call him Philip I know that he’s responsible for his death, too.

I don’t mean that I’m responsible in that I could have done something so he wouldn’t have died. I’m responsible for his being born, for the ways I responded to his life and now his death. At some point, the madness of grief has to give way to at least some lucidity where I can make decisions about how I feel and what I’m going to think about. I resist this. I grieve – as we all do – in the context of my life. Since I was a kid I’ve found it hard to be here and I still don’t get what’s so great about life. The way people don’t understand what I’m talking about is the way I don’t understand their ready engagement with the world. I am so angry that when I’d finally broken it down into something I could manage, when I decided that what I had to remember was I have my kids and I could build my life from there, Philip died. The nameless darkness I’ve lived with can now be called Death – and I can’t tell the grieving from the blaming.

I’m staring down the question we all come to sooner or later – how do I live in the face of death? Lately I’ve been doing that by waiting. In between time with Natalie and time at work, when I’m alone, I wait for it all to pass. I tell myself it doesn’t matter if I write or sew or cook or just lie on the couch and watch TV because sooner or later it’s all going to be gone. So what if I don’t like where I’m living? So what if don’t do laundry for weeks or if I eat sandwiches every night? So what if staying home sounds better than anything I can think to go out and do? When my turn comes I don’t think it’s going to matter where I lived or how many pillows I’ve sewn. It’s all going to fall away anyway, so what’s it really matter?

There is something Zen-like in that. To “not mind what happens” is the way to peace. But that’s not what I’m doing. I’m perverting that into defeat and a surrender to despair instead of acceptance. I’m so tired of Philip being dead, so weary of what I now carry. I know death, I want to scream; I know death. And it is not the end, it is not anything like the end. In fact, it’s endless. And relentless. You can’t reason with it, you can’t stop it, and once it’s come you can’t make it go away. You can’t call your kid any more, can’t watch him graduate from college, can’t get to know his new girlfriend or wonder if he’ll ever have kids because even though you never much liked babies, you were wild about your own and “grandma” had stopped sounding old, it just sounded like having more to love.

I’ve gone through – and am probably not done with – feeing guilty about being a mother who couldn’t protect her kid. Philip, from the second I found out he died, has asked something else of me. And when I talk like this, when I give up, I feel I’m betraying him. What am I doing with all he communicates to me? There’s a deep disconnect between my ranting at his death and the wonder at the love and protection I feel from him, that he shows me every day in tangible ways. Little things, like when I signed up for an adult ed class, walked into the high school and said, “Philip, I want to be in room 201.” Ridiculous, I knew, because class was on the first floor and I’ve been in that school enough times to know the rooms on the first floor start with 1. So while it couldn’t have been room 201, it was the next best thing: 102.

Or the bigger things, the things he gives me to think about. Like last week, on my way home after work, when the drive went from annoying to unbearable. I’m obsessively crazy about getting home, watching the cars on the highway more than the road itself to see if there’s an opening to get ahead. I strategize, I maneuver. I’m aggressive and treat each car like its sole reason for being in proximity to me is to keep me from getting where I want to go. It doesn’t matter that I see how crazy I am, or that I’m rushing home to spend a night alone, a night where I’ll dive under the covers in despair about Philip. I just want to get where I’m going. And on that day while I was thinking that I can’t do this any more but I’m helpless to do otherwise, I heard Philip. “Swerve, mom,” he said. “Just swerve.”

That’s all he had to say and I could breathe again. Philip was asking me if I could go gently, gracefully, from one lane to another when there was room to do so. I felt the breath that would allow me to do that, breath that would create the room I was desperate for. It’s holding my breath that makes me feel trapped. And then I understood what Philip was really telling me. That there are things I will come up against all the time, things that will not move and that I can’t barrel my way through. I can’t control any of that. But I can breathe and go round them, because that is the part that’s up to me.

I still don’t know what death is. I just keep learning what it isn’t. It’s life that’s harder than any of it. And the hardest question of all is that I said I’d give my life for Philip – why, then, won’t I live it for him?

© 2014 Denise Smyth

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