29

20 Jan 2020 11 Comments

by Denise in Addiction, Death, Death of a Child, Grief, Lonlieness Tags: , , , , , , , , , ,

Philip would have been 29 today. I’ve read the posts I’ve written in the past on his birthdays. How thoughtful of me. For all the times I called grief a spiral, I thought things like his birthdays, or the anniversaries of his death, would be more linear, with me gaining some sort of cumulative wisdom along the way. This is not true. This, today, right now, nearly seven years later, is the worst-most-hopeless I have been in a long time.

I hate being alive. I HATE IT. This is more than just a today’s-Philip’s-birthday-I-have-the-blues rant. This is about an impossible loneliness I am inadequate to remedy. This is me, me everyday waiting and watching and hoping that this night, this night when I fall asleep, my nightly prayer will ring true:

Now I lay me down to sleep

I pray the lord my soul to keep

I pray to die before I wake

I pray the lord my soul to take.

I don’t want to fall ill, I don’t want to contract some nightmarish disease or even an ordinary one.I just want to to sleep and not wake up. And stop with the twisted horror or pity on your face. If it’s there, you don’t know. Your desire to live and ability to enjoy yourself is just as alien to me as my craving for nihilism is to you.

It’s no one’s fault. I am severely unequipped  to handle life on life’s terms. I think I once thought I was, but now it seems that was arrogance. It’s more than the fact that Philip has died. Phil, my ex, has lost him too – and look how he’s doing. A LOT of friends, interests, a lovely home, a long-time partner, his daughter who adores him. I am happy for him, and grateful that Natalie has one parent who can show her how it’s done.

I think I suffer from mental illness. I stopped therapy over the summer – it’d been 40 years plus countless medications and still I don’t want to get out of the bed in the morning. I still can’t sustain a relationship. Not even with K, a person so much more loving, wise, smart and compassionate than anyone I could have imagined. But I managed to push her away and eight months later I am still mourning. And what am I doing to help my daughter? She lives in the this crappy little apartment with me but I do nothing to help her get on the right track, simply smiling and nodding while I watch her life spin more out of control.

I tried AA these last four months. But the problem is I bring myself there, with all my resistances and self-doubts and isolationist tendencies and I don’t pick up the phone to call anyone so I might as well stay home and watch TV where I at least don’t have to hold hands and say meaningless prayers during the end credits. There are people in AA who would be more than willing to talk to me. But I have to make the first call and when I think about doing so, the phone becomes unreasonably heavy and I cannot lift it. No one more than me realizes  how much I get in the way of myself but if I’m to be relied upon to help myself out I’m just going to drown.

Today I am waiting for call from a woman I’d asked to be my sponsor. She’s busy with work and with other women she helps and said she’d know for sure by today if she’ll be able to work with me. I don’t think I’ve ever given AA a fair shot. AA’s idea of God isn’t mine and the closest I can come to “turning my will over” is to stop resisting what is so. Aside from my language objections, there must be some sage advice the program has to offer me if I can hear it through the right person and I am desperate enough to want that. But what if she doesn’t call? Everything is the final straw with me; everything brings me to the brink and the hopeless tears don’t stop. I’m scared. What if she doesn’t call? Find someone else, you say. You don’t understand. This is just more confirmation of how alone I am and of my inability to connect. What’s the point of being alive with this much loneliness? What’s the point when I don’t want to go out, and when I am out, all I want to do is get back home and hide? What’s the fucking point?

K called and asked if I wanted to meet her for lunch today in Brooklyn, just get out and not spend this day alone. I almost said yes, but at my peril. She can see me as a friend, she can take care of me today and then let me go home tonight. I am not there. I want to see her because I want to hold her and cry with her and I want her to soothe me in bed tonight. And all this knowledge does is make me more lonely and grieved. Makes me more want to stop waking up because I cannot tolerate all this pain, all this only-pain. This is not something that just-passes. Oh, the intensity of it, sure. But not the the dull ache of everyday’s WTF am I here for and when is this going to end. I hear plenty of people grateful to have one more day, I hear plenty of people in AA claiming to have a life they never thought they could. And I am alienated further. My son is dead, my daughter grows distant, I’ve barely any friends. I am alone. What else is there to say? I am in trouble, and from what I can see, this time through’s not the way out.

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Impossible

29 May 2017 12 Comments

by Denise in Death, Death of a Child, Grief, Motherhood Tags: , , , , , , , , ,

I close my eyes I think of you
I take a step I think of you
I catch my breath I think of you
I cannot rest I think of you
                                  “Looking Out” by Brandi Carlile

“I know the darkness pulls on you/but it’s just a point of view,” she sings in the same song. Which is the  conversation I had with John, my grief counselor, a couple days ago, a conversation which isn’t new to me. The unbroken un-ease I live with comes first from the way I think about things, from the voice in my head. I can be forgiven for the reasons why I think life is impossible, but it’s my responsibility to step back from the facts and see if I can talk to myself differently about them.

I know it’s the way I think that makes it feel impossible to deal with the utter loss of Philip’s death. Not that I can flip a switch and just think about it with more acceptance and less despair. But the way I think informs the way I feel. And these last months I’ve felt a new kind of worse – resigned and despairing. Mostly quiet about it, except when I can get myself to write some. This has to do with work. I’m having more than a hard time there, and when things are this difficult my grief for Philip swells.

I’ve never had a job this difficult or stressful. I’ve never had a job that got me crying at my desk. There’s too much work, there’s too much I have to figure out on my own and not enough time to do that because things need to be done, not just thought about. Which makes it impossible to feel efficient. I scramble every day to keep up and am miserable because of it. We’ve hired a part-time bookkeeper to help, but she comes in in the evening, when her day job is done. Three nights a week I stay until 7 – 8:00 to train her, which is a riot because I’m training her yet she makes more per hour than I do. And if we have a problem – say there’s an issue with the software we use, or a question about a bill that needs to get paid – she can’t take care of it because the phone calls to resolve these things need to be made between 9-5, when she’s not there.

This salary issue is upsetting me more than I’ve cared to admit, because if I admit it, I have to do something about it. I’m not making enough and I’m not being an adult about it. I should talk to C, my boss. I’m terrified. It feels impossible. Because while on the one hand I think I’m worth more, on the other I’m sure C will not agree. How do I know this? Do I have a crystal ball? The only way to know is to ask.

But maybe the biggest challenge is that I don’t feel connected to anyone there. C & J own the firm, S is an interior designer, JR an architect. Whether or not it’s true – and it probably isn’t – I don’t think they see me. C is a designer, and well-known for what he does. His heart – like mine – lies in his creativity. His job – unlike mine – pays him for it. My job is full of problems that need to be solved, and some of those things I don’t care about and don’t want to know about. Not a day goes by where something doesn’t go wrong, something isn’t problematic. One thing piled on another, then another. It’s like slowly sinking into quicksand. Like I’m going down and I’m not coming back up. It’s that hard to breathe.

How melodramatic of me. I can’t shake it. I’ve no sense of humor about this, no perspective. I feel overwhelmed and inadequate. Like a child who can’t live up to her parents’ expectations. How ridiculous am I? It’s only a job, for Chrissake. A difficult job. I’m not at fault here – it is what it is, and if, after four months, I feel unsure if I can handle it, if I even want to handle it, then I should look for another job.

Which feels impossible. When I was looking to leave my last job, it took me months to get up the nerve to write my resume and finally send it out. This was the first job I applied for and I got it three days after I sent my resume. You’d think that might tell me something. But the voice in my head says I got lucky and it won’t happen again.

Once again I have a hard time with music. I play LCD Soundsystem incessantly because all four of their CDs make me want to dance. And I do. But today I decided to listen to Brandi Carlile and it broke me down. And in that sad and vulnerable place all things work rushed at me. And all the loss – my marriage, my house, my son. What now? I ask. Philip died and I am different. It’s this terrible secret I carry and I want the world to mourn with me. I want the impossible.

Here is some of what Carlile sings that wrecks me – and if you heard her sing it, you’d really know why:

“But the last thing I think of when I close my eyes/And the first thing on my mind when I arise/It is a day and you’re not really in my life.”

“I lay this suitcase on my chest so I can feel somebody’s weight/And I lay you to rest just to feel a give and take.”

“When you feel like giving in and the coming of the end/Like your heart could break in two, someone loves you.”

“How I miss you and I just want to kiss you/And I’m gonna love you till my dying day.”

“Where are you now?/Do you let me down?/Do you make me grieve for you?”

“And you, you are in my dreams/You’re underneath my skin,/How am I so weak…I can’t have you, but I have dreams.”

“Say it’s over, say I’m dreaming/Say I’m better than you left me…Learn to let it bend before it breaks.”

“If you were my boat in the deep blue sea/I probably sink you down/I know I should have thanked you for carrying me/But for you I would happily drown.”

“And you know that you’re alone/You’re not a child anymore/But you’re still scared.”

The worst is when she sings, “I was looking out for you/I was looking out for you/Someone’s looking out for you.” I wrote about this years ago (Did I really say that? When I talk about Philip’s death, is it now years ago?) when I remembered these killer words – did I look out for him? I didn’t worry, didn’t think anything was wrong. Did I not guide him enough when he was growing up? And now Natalie. Today I was overwhelmed, today I laid on the couch and cried into my pillow. It’s been a long time since I did that. Am I taking the right care of her? Is there something I’m supposed to “do” to make sure she’s okay? I take care of her, but is it enough? Is loving her enough?

Loving her is all, impossible as it feels to see – to really see – the truth of this.

© 2017 Denise Smyth

“Sixty”

07 May 2017 10 Comments

by Denise in Death, Death of a Child, Lonlieness, Motherhood Tags: , , , , , , , , ,

There are moments that the words don’t reach
There is suffering too terrible to name
You hold your child as tight as you can
And push away the unimaginable
The moments when you’re in so deep
It feels easier to just swim down…

“It’s Quiet Uptown” – sung by Angelica from Hamilton

When Philip died I couldn’t find the words to describe it. It was easier to just swim down. One year later I started a blog because I had so much to say. I am still a mother whose child has died. I have need to talk about him but I don’t know what I want to say. His name – I rarely say his name to anyone and that hurts. In the car, when I’m alone, I talk out loud to him. I say his name. I love him.

I still want to scream at the world my child has died as if the world would reach round and cover me with a big, fluffy blanket, tuck me in, stand guard. But it’s not about the world and that’s the good news. Because a world that won’t take me in its arms also won’t attack. I don’t think Philip’s death was something done to me. It is something that happened and not a day goes by that I don’t wrestle with it. “There’s a grace too powerful to name,” Angelica sings, the other side of the suffering. And I know this. How can I explain that through Philip’s death I have known grace? I would not have chosen to find it this way, but here I am.

Because of where Philip’s death brought me, what it taught me. For whatever I might give in to, I refuse to let it turn into bitterness. Sorrow, soft and quiet, yes. This might be grace. The depth of my love for Philip matches the depth of my grief. Something inside broke when he died, but that dark and terrible place has another side. There is truth in that depth, there is a way to light if I choose. Philip’s love – our love – is my light and comfort. Whatever comes and goes, love remains. So I turn to him and let myself feel that. That is the big fluffy blanket I long for.

I am lonely for love. As much as I feel Philip’s love, I want to rest my head on someone’s shoulder, be held. I am starving for it. There are times when my insides feel like they’re collapsing for want of pressing against someone I love, someone who loves me. Then I pull back — it’s easier to be alone, I think. I’ve seen too much. And I’m turning 60 next year — is it too late?

I’m reading a book called Sixty by Ian Brown, a diary of his 61st year, which I expected to laugh and commiserate with. Instead I’m horrified. Brown talks of the world having no use for the aging — but what world? Surely in his personal world his friends and family have plenty of use for him. Brown is an active guy. He bikes, hikes, skis, goes kayaking. But he talks of his aches and pains, that come with aging and maybe in part from the wear and tear of exercising. Maybe I’ve no aches and pains because I don’t exercise. This bothers me because I used to all the time, and for years now I’ve refused to move. I’m getting older and think I should take long walks, but I cannot force myself.

Brown seems to be making 60 define his life. I don’t think about it that way — I think I’ll define 60. I don’t feel so much older than those around me, including the young woman my daughter’s age whom I work with. I look good, I feel good, I have a lot of energy, all things Brown complains about. He even questions the way he dresses, while I make an art of it. That’s what scares me about the book. I work to not let the world define me. Why should age matter in terms of what the world expects of me? Yes, things change. There are adjustments coming at me that I can’t yet fathom. But to spend a year looking at my life through the lens of my age is nuts.

It’s not that I’m not aware of my age, or that I never think about it. I changed jobs three months ago. My boss is handsome. Classically tall, dark, and good-looking. He’s the kind of guy I look up on the internet so I can show my friends what he looks like and watch them swoon. The kind of guy I always considered out of my league. Two weeks ago he threw himself a fiftieth birthday bash in a house on a lake, which included fireworks that spun glittering down from the sky around us. Yes, around us. Some people ran for cover. His age, his handsomeness, makes me think I’m getting old. Sure, he is, too, but at 59, 50 feels young, and he seems to have the world by the balls. And we all know men my age are looking down the decades for women which leaves me with…

Oh, bullshit. So what if men, in fact, look for younger women? That’s about getting laid. I’ve no problem with getting laid (except for the problem of no partner), but I want something more than sex, the thing that makes the sex mean something. Not that I do anything about it. In fact, I pointedly do nothing about it, the way I stay home so much. The only guys I meet are the ones in the current TV series I’m into. And we know where those relationships lead.

Philip’s been spared the pain of this life. Yes, you say, but he also misses the beauty and wonder. Except lately those are just words to me because there’s a lot more hurt than anything else. And the constant work of trying to see the other side of the hurt is exhausting. This doesn’t mean I think he’s better off dead. Beauty and wonder come from inside. Philip had it. He was it. He took it when he died, and it’s my work to remind myself that no, he really didn’t.

© 2017 Denise Smyth

Forgotten

18 Mar 2017 13 Comments

by Denise in Death, Death of a Child, Grief, Motherhood Tags: , , , , , , , , ,

When my kids were little I used to tell them life isn’t fair, but we try to be. Life isn’t fair or unfair – it just is. We’re the ones who decide what life is by the way we think about it. We’re all going to die. What’s unfair about that? I mean, what if no one died? On the simplest level, we wouldn’t fit on the planet. Everything goes in cycles, everything changes, all things end. It’s more helpful to observe the way life is than to decide how it should be. So many people have said to me that Philip shouldn’t have died. Really? How can anyone know that? What matters “should?” That he died is my sorrow, but I can’t see the bigger picture we’re all part of. I want him to come home, but “shoulds” are not for me. He has died and I have to live with it. It’s not fair or unfair.

As for good-bye – there are things that do not have “closure.” The very idea doesn’t make sense. If the definition of closure is to bring to an end, how can you possibly have “closure” when someone you love dies? I think the yearning for closure is wanting the pain to stop. But as long as you love, you’re vulnerable to pain. Closure and acceptance are different. Acceptance is when you stop fighting what’s so – that’s all. It doesn’t mean you’re happy about it. And “moving on.” What’s that supposed to mean? I’ve said a million times, you don’t move on, you live with. I will never “move on” from Philip’s death. I don’t live in wild, crazy grief any more, but I’ve a deep, abiding sorrow. It’s quiet, and it’s always there. But that’s the other side of my love for my son. I can’t get rid of one without the other.

Facing death is our biggest challenge, and we do everything we can to avoid it. I don’t think we even realize what we do – go to the gym, stay in shape, wear the right clothes…what is it all for? It’s to prolong life, thereby avoiding death. I get just as caught up in it as anyone. Death is terrifying because we don’t know what it is. When someone we love dies it affects us deeply and irrevocably. You change a little every time. Grief doesn’t go away any more than love goes away.

Death is the last and biggest change. All the changes we go through in life can help prepare us if we stop resisting them. Every time we release an emotion, release a fear, we’re getting ready for death.

What would life be without death? What would make us stop and think and try to make sense of life if there was no death? Death shows us what’s important, time makes us forget. I have forgotten. I am too much in the world these days, too much at the whim of what’s happening instead of letting it be. My new job is a challenge. And instead of remembering I’m competent, I’m riddled with anxiety. I forget to eat because that’s what I do when I’m anxious. And if I think of eating, my throat closes down.

Such old behavior. I can’t control the work that’s thrown at me, but I can control what I eat. Not eating feels powerful – a need that I’ve turned from. And by the end of my work day, when I know I should eat something before I go home, I’ll pick on my salad or eat slow spoonfuls of yogurt. My upsets always tie into food. For years I had bulimia. On and off, but when I was on, I went full blast. When Philip died, first I whittled my 5’4″ self down to 100 lbs. And when I could no longer stand the hunger, I started eating and throwing up. Punishing myself, because when something goes wrong, that’s what I do. I did it until the violence of what I was doing to my body started to scare me. I’d shove my finger down my parted throat and strain so hard my insides felt like they were coming out the other end. I had to rid myself of what felt wrong and dirty. Until my eyes were bloodshot and my head was throbbing . Until my body felt as empty as my life did.

In the years following Philip’s death I began to see what was important. I understood – no, I knew – that whatever it was, I could put space between me and it. Like if I took a new job, my real work was not Excel spreadsheets and vendor payments. It was the way I treated what I was doing. Every situation is an opportunity to make meaning, to learn how to love. And what are we here for if not to learn how to love? How, exactly, does Excel teach love? It doesn’t. It’s what I make of it. If I remember that what I’m doing matters to my boss, if I work to give him what he needs, if I do it with care and respect, that, right there, is love. Because love is not merely a feeling, it’s a state of being.

But I’ve been panicking a lot, feeling like what I do isn’t good enough, waiting to be exposed. Drama, drama, drama. I can’t seem to get myself out of it. Then I go home and hibernate. I don’t know how to make a life I could enjoy. I would say the biggest reason is the nasty, nattering voice in my head that I goddamn can’t stop listening to.

The anxiety I feel at work turns into helplessness when I go home. I want to move but the thought overwhelms me. I want to be inside but I think I should be out. Sometimes it’s like I’m just waiting to die because what’s it for, anyway. I have forgotten. When Philip died I was plunged into a life I couldn’t scramble out of. Eventually I began to work with the void and understood why it’s called “fertile.” But my heart’s closed along the way. Along with that writing’s been tough. I can’t write when I’m shut down.

More on that later…

© 2017 Denise Smyth

“In Memory”

27 Feb 2017 10 Comments

by Denise in Death, Death of a Child, Grief, Lonlieness, Motherhood Tags: , , , , , , , ,

I watched “Outlander” recently. (SPOILER ALERT: if you’re planning on watching it, you might not want to read the next few paragraphs.) The protagonists are Claire and Jaime, who are deeply in love. At one point, the story jumps forward twenty years and we see Claire visiting Jamie’s grave. She’d just come from the wake of a reverend she’d known for many years. At the wake was a young man the reverend had taken in as a child and raised and who was grieving the reverend. He sat down to talk to Claire. “How do you say good-bye?” he asked. “I don’t know,” she answered.

Claire sat at the grave for a while. For twenty years she’d been missing Jaime. She talked to him, then told him she was going to say something she’s never said before. And what she said was,” Good-bye.”

Fuck that.

Philip once told me he was in the place of no good-byes. Why would anyone want to say good-bye to someone they love? It’s bad enough they’re dead. But you still love them and so can have a relationship with them. Not the one you want, but the one you have. To say “good-bye” is to cut off. I don’t believe one can really say “good-bye” to someone they love deeply. And a child? Can one really say that to their child? Because when someone you love dies, when your child dies, your life changes irrevocably. You can go back to your job and back to the gym and continue doing whatever you were doing before death paid a visit. But you’ve changed, you feel the loss hovering always in the background.

It is not your child you say good-bye to, it is not your child you let go of. What you stop resisting is the fact of what death has taken from you, all the pain that it makes you feel. Not at first, not all at once. But grief opens up spaces within us. Those spaces make us vulnerable not only to heartbreak, but to joy. Joy seems to have no place here. But the joy of the love between you and your child remains. Nothing, not even death, can take that away.

Would that I pay attention to my words.

“In Memory.” Words I want to run from. They, along with “Rest in Peace,” are some of the most devastatingly sad words I know. Last week, Thursday, February 23rd, was the fifth anniversary of Philip’s death. My brother and sister-in-law, who never forget, made a donation to St. Jude’s Children’s Hospital in memory of him. Those two words were on the front of the card that came to tell me. “In Memory.” No, I want to cry out. He’s not just a memory, he’s more than that. But is he? Philip is round me. He talks to me, comforts me, sends me signs every day. I try to stay there, in that grace. But then there’s the other side, the fact of sight and touch, the conversations, all the things I miss because he isn’t here the way I want him to be.

Fighting that is useless. I know this. I don’t blame anyone for Philip’s death, I don’t think “God” did this. God doesn’t meddle in people’s lives, but he sure makes a good scapegoat. I don’t fret that there’s something I could have done, if only I… There wasn’t anything I could have done. Philip’s death is something that happened to us and we are in this together. Wishing things were otherwise is a waste of time, time that could be spent in life, life that feels like forever without Philip here but will feel like a blip when I face my own death. Where did it all go, I will wonder. Am I ready? It won’t matter. Ready or not, when it’s time, it’s time. Death is the one certainty in life.

This anniversary was particularly difficult. I didn’t go to work. I spent the morning with Natalie and the rest of the day with Kirsten. But I could take no comfort, in spite of all the ways Kirsten took care of me, in spite of the fact that people reached out to say they cared. My boss, who I’ve known for two and a half weeks, reached out to me. Phil called me first thing in the morning. I could have cried. What would it be like, I wonder, if we were still together, if I had him to talk to about Philip because he is his father, because we were a family. I envy people who have each other when tragedy strikes. But we live with the choices we make, fantasies notwithstanding. Tragedies tear people apart probably as often as they bring them together.

Still, I’m lonely. I’m lonely for Philip, lonely in my grief for him. My mind goes to terrible places. It’s hard to talk about. I had a difficult childhood. For so long I wished I was dead – what other way was there to stop the pain? I tried drugs and alcohol but all that did was land me in AA. Somewhere along the line I lost any appreciation I might have had for being alive. I have not recovered. When I see my daughter, my heart springs open. She is my love. But when she’s not here, it’s almost like she doesn’t exist. When she leaves I’m back to my lonely world, the one I’ve created in my head. And Thursday, no matter who was around or who reached out, I couldn’t take it in. There was no place I wanted to be. And this is what I meant about it being hard to talk about – so often I just don’t want to be here, to be part of this. So often I feel living is hard and sorrowful more than anything else. There are people who are sick and dying and scared, and here I am, alive and well, often wishing I wouldn’t wake up in the morning. What regrets am I going to have when it’s my time to die?

Last Thursday I cried to be where Philip was, so great was my grief. I haven’t cried in a long time. I’ve felt myself going dead these last months rather than feel anything that hurts. But I can’t cut off one part of myself without affecting the whole. I can’t keep out pain without keeping out peace.

© 2017 Denise Smyth

The Leap

29 Jan 2017 20 Comments

by Denise in Death, Death of a Child, Grief, Motherhood Tags: , , , , , , , , ,

“Leap and the net will appear.”
John Burroughs

Philip’s phone line is still active. For $10 a month we get to call his phone and hear his voicemail voice. The automated  lady announces him, so all he says is his name, “Phil Smyth.” It doesn’t even sound like him. He’d started calling himself “Phil.” But he will ever be Philip to me.

His mailbox is full. I called Verizon once. “My son has died,” I cried. “I want to hear his messages.” The woman was kind. You need his phone, she told me. Call back when you have it and we’ll change the password so you can get into his phone and retrieve his messages.

I talked to Phil about it. He thought I was nuts, was reluctant to give me the phone, I didn’t push it. But now I want it. I want to do this. I want to read his texts, I want to hear what messages people left him. I don’t care if it tears me apart. These last months I’ve been so removed, so out of touch with what I feel about Philip that I’d like to be ripped open. I’d like to see if there’s something more to me than this surface life I feel I’m living.

I’ve talked about grief being a spiral, not a straight line where you start to get “better” and continue along. Grief expands and contracts, triggered by memory, triggered by love. And I’ve spiraled to the outer edges, to a place where I no longer try to make sense of Philip’s death or my life. I’m not stepping back, I make things too real, get too caught up. I am not steady. Tune into me and I’m comforted. Say something contrary and I make myself small as I can. Less of a moving target, less of me to feel pain.

I don’t write much because I have nothing to say. At least, that’s what I feel like. What am I to talk about? Can I keep telling you about Philip? I make no sense of his death now. I cry, I’m angry, I’m disconnected. Disconnected is the worst. I’d rather weep until my eyeballs fall out than be disconnected. Didn’t I say I wanted to make meaning, that what anything  meant was up to me? Didn’t I write reams about “Accept it, Leave it, Change it?” Wasn’t I in touch with the grace that is the other side of death? At least for a moment? Didn’t I believe?

I am a mother whose son has died. Every day I feel that. I don’t think about it in any useful way. I feel about it, feelings that shift with the wind. Diminished. Resigned. Angry. Bitter. Despair. Helpless. Disconnected. Then I look at his portrait for a while and know how deeply I love him and I weep.

I start a new job tomorrow. During the interview I told them Philip died. I don’t know why I said it – what did that have to do with the job? It didn’t. It had to do with me. That he died is an essential fact of my life and if I’m going to spend time with people, they have to know. That’s why I told them.

I decided months ago it was time for a new job. What angst over my resume, in spite of the fact that I had two friends willing to help. I can’t do it, I thought. Because I don’t know how to write about myself, because I don’t have a degree, because I think the world is my enemy and anyone interviewing me will shake their head and dismiss me. Because that’s the way my crazy brain works even though none of that’s true. And I have a resume – it just needed to be updated. Back in 2011 when I was looking for a job, I paid someone $500 to write my resume. She also wrote my LinkedIn profile, several cover letters, went over job-hunting strategies. I’ll put it in her hands again, I thought. Let her do what I can’t.

When I called her I found out she doesn’t update resumes. She takes you through the whole spiel for $1500. When I told her that was too expensive, she referred me to someone who charges less. For a mere $700 I could have a new resume.

I actually considered it. I wanted to pay to get this burden off me. She’ll make look good, I thought. I need someone to make me look good because I am not good at all.

God I’m sick of myself. At least, that side of myself. Not sick enough to be rid of it, though.

For several months I had anxiety about my resume. I’ll do it over Thanksgiving weekend, I said. I didn’t. I’ll do it over Christmas vacation, I said. The pressure was on. Work was getting difficult and with the new year coming I wanted to make a new start. I might  have been anxious about the resume, but the need to leave was stronger. Finally, I did it.

During my Christmas vacation I went to Kirsten’s house. Why don’t you google resumes, she suggested. Duh. So I googled exactly what I am – Construction Administrative Assistant. And there it was – a whole resume full of bullet points that said what I did more elegantly than I could have on my own. With Kirsten’s help I wrote my resume, wrote a cover letter and found a job ad on Craig’s List for an Administrative Assistant for a construction company.

After months of agonizing over all this, here’s what happened: Sunday I send the resume. Monday I get the call. Tuesday I get the interview. Wednesday I get the job.

Am I not blessed? How do I not get this?

Lately I’ve turned Philip’s death into a weapon against myself. I am damaged goods. I am angry I have to be this mom. I’m resentful because life goes on and it doesn’t care about Philip’s death. And that is not about grief as much as it’s about the way I have of talking to myself when I’m not vigilant. Let me be the voice in your head, Philip tells me. And if I did, none of this is what I’d be hearing.

I need to hold close the fact that everything passes. Life is in motion, ever changing. Every change is a little death. It’s also a chance to let go, to leap into the great unknown. One day I will pass, too, take the greatest leap of all. And when my time comes will I feel I wasted it in apathy, in anger? My life with Philip is forever changed – we will never be the way we were, but we are something different. His presence is as strong as ever – when I pay attention. You’d think I’d pay attention because that’s when I feel closest to him, this child that I need as much as I need air and food and water.

I no longer can live with his body, but I certainly can live in his love.

© 2017 Denise Smyth

Hurt

18 Nov 2016 19 Comments

by Denise in Death, Death of a Child, Grief, Motherhood Tags: , , , , , , ,

All things children hurt. School buses, even though my kids never went on one. Mothers holding hands with their little ones. Pregnant women. Diaper commercials. People talking about their children, saying “my son” because he is alive. Maybe I can still say, “my son,” but talking of him reminds me and whoever is listening that he’s dead, makes it real and uncomfortable.

Natalie and I were out and ran into C., a woman whose son is Philip’s age and whose daughter is a year younger than Natalie. The four of them were friends. I hadn’t seen C. since Philip’s funeral. Nothing, of course, is mentioned. Our hello-hug is held a little tighter, a little longer. “How are you?” is asked with an emphasis on “are.” “I’m doing good,” is my standard reply. The inconceivable has happened, this death that shocked and grieved me, that changed me and my family forever, but even the people who were affected by it keep a psychic distance. I think in part they do it for me. I think they’re afraid if they bring it up it might remind me, might hurt me. As if I don’t already think about Philip every day, as if it doesn’t hurt me every day, as if “hurt” is the word that comes close to describing what living with his death feels like.

And I think people don’t like to talk about it because of what they might feel. It’s not contagious, I want to say. Inevitable, but not contagious. Still, it’s death and it’s taboo. Do we think if we don’t talk about it, it won’t happen to us, to those we love? Do we think it’s better not to think about it, to deal with it when it’s too late and it steam rolls over you and if you’re lucky, you’ll have someone to peel you off the floor?

Philip was a young man when he died, but he is my child. He once had that innocence, that heartbreaking vulnerability I am reminded of when I see children. And much as he lost that innocence as we all do, he had a soft and tender heart. Which is exactly what keeps me close to him now, all the love that we were, that we are.

Sometimes I feel trapped. Philip’s not coming home. I will never have children again. I broke up my family when I left Phil. I might grow old alone. Life will have its way, not my way.

Much of what I feel comes from what I think. It doesn’t seem that way – emotions are what kick my ass, make it difficult to see that I am stirring them up by the stories I tell myself about the situations I find myself in. Reality becomes personal. In other words, it’s me that’s kicking my ass.

But Philip’s death is so big. I don’t know how to think about it any more, I don’t know what to say. I avoid. Which is why, in part, I haven’t been writing. I’m in protective mode. Like an opossum, I’m playing dead. I’d been reading through 18 binders of emails Ed and I wrote to each other from 1997 through 2013, the year after Philip died. I did it because I’m working on a memoir and I wanted to see what I’d written about my kids, what I could use for my work. I didn’t think about the fact that I’d also written about my mother. Had no idea that her past cruelty could shut me down. Because it’s not past, not really. It informs much of my life – too much of my life. She is so much a part of my story and I freeze when I think about writing about her.

After Philip died I was gutted. Everything poured out of me, so many words, so desperate to write my way through this. Devastating as his death was, I was alive. My heart was broken, but open. That’s where my words came from. There’s a place I go to when I write that I can’t now access. Even now I feel like I’m stringing sentences together. I can’t find my voice, can’t find the rhythm. I’m dull and hurt and shut down and all I want to do is quilt. I make beautiful quilts to hang on my walls. I play with my fabrics. I create. But I can’t quilt 24/7 and I find myself daydreaming about what I’m making and what I want to make because it soothes me. Too often I am unhappy. I don’t want to be at work, I don’t know what to do with myself afterward. I long for the weekends so I can get lost in my fabrics. I feel helpless about writing. The fire I had turned to ash.

I don’t want to be the mother whose son has died. I wrote so much in this blog about how pointless it is to argue with reality, yet here I am doing just that. And since that is so painful I shut it down. I don’t talk about Philip’s death, don’t write about it. I tell myself I can’t live with it – but that means I’m killing myself off. Resisting reality is resisting life.

I don’t yet understand what’s happening. I can’t find my sea legs. They must be there because I’ve had them before. But whatever this psychic regression is will not last. I think I’m going to emerge from this a different writer. I may feel helpless about getting back to my work, but I’m not hopeless.

© 2016 Denise Smyth

01/20/91 – #4

20 Jan 2016 25 Comments

by Denise in Death, Death of a Child, Home Birth, Motherhood, Pregnancy and Birth, Spirituality Tags: , , , , , , , , , , ,

Today is Philip’s birthday. He would have been 25. Time has ceased for him in that way, and it has changed for me, too. I’m much more conscious that the only time it ever is, is now. That’s become a kind of meditation for me, this focusing on the present. Trying to stay focused on now does not leave Philip behind. He died nearly four years ago. I don’t think a lot about that time. He is here, now, and that has to be enough, like it or not.

But last night I was full of the night I gave birth to him. He was born at home on a cold January night. At one point – probably after I bit her shoulder – my midwife took me outside, arm around me, holding me up when I’d get a contraction. The frosty air, the dark, the quiet – she knew I needed a change from my bright apartment with its hospital pads spread on my bed and placenta bowl empty and waiting.

I thought my good attitude and fearlessness about giving birth would ease the pain. It did not. I yelled. I wailed. Part of me then rose up somewhere, was watching this, and I knew it was going to be okay. But I gave myself permission to scream. Those contractions were long and dark and hard and brought me unwillingly to a place I call terror. At the height of one of them I heard the words that would eventually bring Philip and me full circle – “There’s no way out but through.”

Those are not words of comfort. Reality rarely is. I was being asked – no, told – to bear a pain I thought impossible to bear. I was at its mercy, and merciful it was not. But after it was over I had Philip, sweet baby boy, this child I loved when he was just a thought. How graced was I?

Those words came to me after he died, too. And if there was no other reason to have experienced his birth for exactly what it was, hearing those words would have been enough. They brought me full circle. I think of them often. I am more willing to get through. I have to – I’m still in relationship with Philip, and like any relationship, it needs to be tended to. Like any relationship, the more I am present to it the more I see it for what it is. A couple years ago Philip asked me if I knew what responsibility was. I didn’t want to know what he was getting at. I was a wreck then, and if he expected me to take responsibility for our relationship, I couldn’t. I did what I could, and if I could sum it up in one word, it would be “cried.” I didn’t know how many tears I had. In my mind I was hanging on to him for dear life. His presence was palpable, but I was too caught up in grief and terror to even utter the word “responsibility.”

“You know, you are his mother,” Ed reminded me once. That was too much. I was his mother, but I couldn’t act like one. Of course I couldn’t. I wasn’t ready, didn’t think I ever would be.

My sense of Philip has shifted. I am learning how to breathe with him. He’s come into play in the choices I make. I want him to see me do well. It’s my gift to him. And this can only happen because his death did not stop our relationship. When he first died, I took a drive, trying to figure out how to kill myself. Then I heard him: “Mom, it doesn’t work that way. You have to find the joy.”

I believe him. Death is not the answer. And as for joy, maybe it will come, but for now, it’s peace that I’m after. I want Philip to know that. I want him to know that I am doing well exactly the way I want Natalie to know I’m doing well. That’s what my children need – a mother who is present. Philip will get no less from me because he’s died. And I know not what death is except for the fact that it means a particular body will no longer be present. I don’t believe that just because you die you get to go to a better place. Or if you’re a “bad” person, a worse place. I just have this idea that whatever you’re working out you will keep on working out.

Early on I talked about being in a grief group, and being asked to write a letter from our loved to us. I sat and listened to Philip, and he ended the letter with a most lovely line: “Mom, I love you. I’m in the place of no good-byes so we can talk whenever we want.”

The place of no good-byes – if I have to think of him in a place, then let that be the one.

© 2016 Denise Smyth

Things of the Spirit

25 Dec 2015 2 Comments

by Denise in Death, Death of a Child, Faith, Grief, Spirituality Tags: , , , , , , , , ,

You’d think that Philip’s death would make the holidays miserable for me – a reminder that my family is no longer intact, is not the way I ever thought it would be. That the unthinkable has happened. But the light of Christmas is as much a part of me as grief is. So I go back and forth between the warmth I feel this time of year and the chill I get when it hits me again that Philip has died. It strangles me sometimes – looking at his picture, knowing he was here, knowing he isn’t coming home. Knowing I can’t do anything about it, that talking about it can make me feel even more helpless because it changes nothing. Things of the spirit need come first, I remind myself. But why is the path to peace so hard?

When I was a kid we had big Christmas celebrations. Christmas Eve was the best. We gathered at my grandmother’s house, my mother’s mother. My mom had six brothers, and some-but-not-all had kids. Plus my uncles had lots of friends who’d stop by. There was an uncle who’d dress up as Santa, me always guessing which uncle it was, proud of myself for recognizing he wasn’t the real Santa. The real Santa was too busy running around in his sleigh to stop and visit grandma’s.

I love giving gifts. I’ve baked dozens of cookies, an apple cake, a caramel cake and chocolate mousse. Christmas Eve I went to my brother’s house with Natalie. Christmas Day Natalie will be with her dad, and I’ll be at Cindy’s where we’ll eat leftovers and watch movies. I don’t have a lot of friends, but I am blessed with the ones I do have.

I prefer fall and winter, even though I get cold easily. At work, where my co-workers think it’s too warm inside and so open windows, I wait for them to go to the bathroom and quickly close them. I have coats for varying temperatures and have finally figured out that scarves and hats actually work. Still, I adore winter, though I balk when it gets here because that means it’s leaving. Its coming means the days begin to get longer. Dusk at 4:30 is still too late for me. I want the short days, I want an excuse to stay inside. Winter is cozy and comforting. As are evening and night.

Philip was born in the winter, and he died in the winter – still, that’s when I feel safe. His birthday brings me close to him, and the day he died, closer still. Closer because his death was an explosion, making him larger than life. It took him away, yet I feel him near. How to explain that? The only thing to say is love. Because no matter what’s gone, our love remains. My time with him can’t be taken away and even though he’s died, he hasn’t become what I feared – only a memory. Memories are static, and what I have with Philip feels much too alive. For that I am grateful. I have suffered grievously for having lost him. Now I am grateful for having had him, for what I still have with him.

And for knowing that whatever I suffer I do not suffer alone. Who is simply “happy” to be alive? Who doesn’t feel the terrible sadness conjured up by a supposed season of peace? A sadness more profound because, as a child, in my innocence, I believed there was a special kind of magic around Christmas. The Santa Claus dreams of then can form a cruel contrast  to the reality of now. Those childhood years may have been short, but the impression they left is endless.

Where is hope, then? Not in things of this world, for sure. For this is a world we come to in order to die. Hope lies not in imagining the world as I think it ought to be. It lies in my ability to see it differently, an ability that Philip’s death has honed. That everything dies is no longer an abstraction but a hard truth. I can hold my breath and curse God if I choose. Or not. I choose not. What has God to do with this world? If I believed in the vengeful God of my childhood, I’d say everything. But even as a kid that God made no sense to me. I never understood being told that “God loved us so much he sacrificed his only son for us.” What does that even mean? How do I benefit from God’s dead son? And how could I love a father who had one special son who he then killed for my sake? Why did one son get to be special, and not another? And if He killed his special son, when was He coming for me?

The first time I heard, “Man made God in his own image” I knew I’d learned something profound. And freeing. The vengeful, tyrannical God of the Old Testament was a choice. Which didn’t mean I invented a kinder one or that I chose to be an atheist. I’d mixed up God with my parents too deeply to switch to a godhead more friendly, and I wasn’t arrogant enough to be certain there was nothing beyond what my senses showed me. There was too much mystery to life for me to presume I had an answer.

I saw the absence of God in the world as proof that He didn’t exist. The problem right there presents itself as one of language – “He” didn’t exist, as if God had a sex, a gender, a form, was a being the way I was a being, only mightier. Then one day I read, “We say, ‘God is’ and we cease to speak,” and I thought that was as close to an answer as I’d ever get. Because when it comes to things of the spirit, it’s the open-ended answers that come closest to the truth.

It might sound odd for me to be loving Christmas given all I’ve just said. I don’t see it that way. I see Jesus the way I see Bhudda – a being more enlightened than the rest of us who walked this world for a while. It’s the religion man made around him that I object to. The seed of Christmas is love and now’s when I have a chance to express it in ways that I don’t during the rest of the year. It cuts both ways, this love, filling me up for what I have while making me keenly aware of what I’ve lost. When I say, “Merry Christmas” what I mean is much love to you and yours. And that’s what I wish for all of you – love, and whatever peace you can find.

© 2015 Denise Smyth

Was I?

09 Dec 2015 14 Comments

by Denise in Death, Death of a Child, Motherhood Tags: , , , , , , , ,

No one trains to be a parent. And I didn’t read any books about someone’s version of how to do it, their methods, their advice. I’d figure it out on my own. Like when Natalie was a baby and cried and cried and cried; I’d heard of the “Ferber Method,” where Dr. Ferber thought babies needed to be trained to fall asleep, so let ‘em cry.  As opposed to assuming they’re crying because they need something and maybe if you hold them, they’ll feel safe enough to sleep.

However.

Natalie would wake up at all hours of the night to nurse. By the time she was five months old, I was exhausted. One night when she woke up at midnight, I decided that’s it. I’d let her cry. Screw it. I needed to sleep. Like I could sleep during the three hours she screamed bloody hell. Three hours before I ran to pick her up and nurse her. She latched on between the shaking and muffled sobbing; she sucked my breast like it was the breath she was breathing. By that point my milk was irrelevant. She was hungry for me. For what, I asked myself, for what? For what did I do that? I don’t think babies (or children, or adults) should be left to cry – it’s not natural. If they’re crying, they need something. Natalie’s needs were my needs. By the time I picked her up,  I craved her as much as she craved me. Bottom line – I wanted babies, and babies need attention. I wanted to nurse them, and that meant extra attention. And when I gave my kids what I knew they needed, we all felt better.

But when my kids got older, my instincts got confused. There were things I wasn’t clear about, things I wasn’t sure how to handle. My mind was telling me to interfere with this or try to stop that, but my heart didn’t agree and it’s like I was a trio – mind, heart and the one who had to decide between. Most of the time I went with my heart because it felt right, but maybe I was too scared to choose any other way, scared that Philip would be mad at me. So was I, then, looking out for him?

When Philip was 16, he wanted to go to an all day concert some hours away. Phil and I weren’t crazy about some of the kids he was hanging out with at the time. He’d gone the year before, but it was with a kid we trusted and his dad, who’d agreed to take them and spend the day. Not so this year. Someone was driving there, someone driving back. The details were vague, and Phil and I knew there’d be drinking and drugs at this thing. Phil refused to let him go, and Philip was furious. I’d never seen him so angry – and I knew that if it was me alone, I would have let him go. I stood there wide-eyed and twisted while Phil and Philip fought it out. I don’t know how Phil did it – I do not know how he was able to hold his ground. He was protecting his son. All I was was terrified, and that is what I’m talking about – was I looking out for him, or protecting myself from his anger?

Phil and I found out Philip had been smoking pot when he was sixteen. We took him straight to a drug counselor, which might sound dramatic except that I’m an addict and thought I could fix him before he turned into one. She sat with the three of us, then with Philip alone. Afterward she said, “This isn’t a kid with a problem.”  And at that point, he wasn’t. We bought a couple of drug tests, tested him a few months later, he was clean.

Philip was a kid with his feet in two worlds and he died with his foot in the wrong one. This is something I’ve been deeply ashamed about. Phil and I are decent people. We lived in good neighborhood, were surrounded by families whose kids were smart and active. Philip was intelligent, kind and sensitive. He got into one fight in his entire school career, and that was because he was picked on. In high school, he joined the fencing team and began to hang around with good kids, kids interested in school and their future. So how did he also wind up hanging around with kids who were more interested in drugs than in school? And while he wasn’t acting badly, he wasn’t working as hard as he could in school, only wore t-shirts that were black, and refused any shoes except his black high-top Converse.

Was there something I was supposed to do about that? Was I – really – looking out for him?

When my kids were growing up, there was a family who lived across the street from us for a while. The dad was a doctor, and I’m not sure what the mom was, but she worked full time. They had two kids – Ethan, who was a year older than Philip, and Julie, who was a few years older than him. Ethan was polite. He was allowed to play with Philip, but he wasn’t allowed to come into our house. It wasn’t personal – it was just a rule, and I figured that the parents wanted to be able to see exactly what he was doing. So he’d ring the bell and wait outside for Philip to come and play. Once I asked the mom if Julie could baby-sit for my kids. No, she said; she’s not allowed to work, she has to pay attention to her homework.

I was impressed. It seemed to me that these people knew exactly who they were and what they expected from their children. It also seemed to me that they were going to get it. I took clarity for certitude. Because I was so often unclear – how was I supposed to force Philip to use the brains he had when he slacked off? How was I supposed to force him to hang around  with kids I thought would be better for him? I couldn’t lock him in his room, I couldn’t forbid him to stay away from people. I blamed myself for the choices he made that were poor. Of course, I took no credit for all the good in him.

This is part of the ongoing conversation I have with myself about Philip’s death. Fortunately, it’s a small part. Regret and guilt are inevitable, but they are as much a part of the story as I make them be. And I do not much make them be. Philip has died but I have not. Nor has Natalie. And “died” doesn’t mean gone. It means change, change I don’t want but change that is so. I can ask myself if I was looking out for Philip, and the way I answer that is the way I feel about it all. If I want to wallow, I will answer no. If I want to find peace, I will say of course I was. He is my son and my love and so yes – of course I was.

© 2015 Denise Smyth

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